Impact Review 2019
How we made a difference in 2019
“Hi – I’m Monty. Thanks to you we have gained much more of a social media following! Check out the results later on. Thank you for your likes, shares, follows and mentions. Please keep following our journey!”
While your here why not visit our website at www.the-movement-centre.co.uk
We had a difficult start to 2019, when we found out we would no longer be receiving any NHS funds. This had a huge impact on the way we had to work. Our families, supporters and individuals really helped us through last year, and we can’t thank you enough.
The support we received in 2019 was incredible. Organisations such as St. James Place and The Edward Gosling Foundation allowed us to offer free initial assessments to lots more children. Companies such as Granite and Aico allowed us to help more children reach their full potential. And thanks to our kind supporters we raised over £5000 from our #Cake100 challenge (which is still active by the way).
Lot’s of new faces came through our door last year, but we also saw a couple of members of staff leave. Pauline, who was clinical lead at The Movement Centre, sadly retired early in 2019. She has given so much to The Movement Centre throughout her time here and will be missed by the families she worked with. Replacing Pauline in a Clinical Specialist Physiotherapist role and new member of the team was Jack Mantle, who has fitted into the ‘TMC’ team really well, and we are looking forward to pushing the team forward with Jack on board. Polly, our Operations Manager also left at the end of 2019 for a new challenge, moving on to another children’s charity. She has very kindly said she will continue to support us through volunteering at events.
We couldn’t continue doing what we are doing without our amazing families. They all dedicate their time to make sure their child is taking part in Targeted Training activities every day at home; they travel from far and wide to their review appointments; and some also fundraise for us. We can’t thank you enough!
The Movement Centre Team
What is Targeted Training Therapy?
Targeted Training therapy is different from other therapies. It works by placing the child in an upright position and uses equipment to provide stability and support. This support is given directly beneath where control becomes an issue for the child. As each child makes progress the level of support is lowered so that they can continue to develop movement control. By doing this it mimics the way in which movement control is naturally developed in a young infant; from the head downwards. A course of Targeted Training therapy takes place over 12 months. Children attend our centre in Oswestry approximately every eight weeks and take their Targeted Training equipment home. This comprises of a specially designed standing frame. Each frame is tailored and adjusted to the child’s specific requirements. The therapy involves practice for half an hour to an hour every day. Although it sounds like homework, it can actually be lots of fun, and children enjoy their therapy, while making progress, reaching their individual goals.
“The staff at The Movement Centre are very welcoming and knowledgeable. We found that Targeted Training helped our daughter gain more strength”
Every year many children are born who have a disability that can have an affect the way in which they control their movement. The majority of children (79%) who come to The Movement Centre have Cerebral Palsy. We also see many children who have Global Developmental Delay, Down Syndrome or an undiagnosed disability. Targeted Training therapy can help children who have experienced a brain injury during their childhood, which can also have an impact on their movement control. It is difficult to quantify just how many children in the UK find it challenging to control their movement. While, Targeted Training is not suitable for every child who has Cerebral Palsy, it can benefit many children who have this diagnosis. It is estimated that 1 in 400 babies born in the UK has a type of cerebral palsy. With the birth rate in excess of 700,000 per year there could be as many as 1,800 new cases of cerebral palsy in children each year. This figure is set to rise.
A recent study has outlined that the number of children with Cerebral Palsy in England and Wales is estimated to increase by 7.5% by 2020. It has also been documented that disabled children aged 0-16 are the fastest growing group among the population of people who have a disability. In the future we hope to carry out further research to enable us to estimate just how many children in the UK find it challenging to control their movement. However, the figures indicate that the number is set to rise. We are, therefore, aiming to develop our services so that Targeted Training is more accessible to the families who could benefit.
“Our research has shown that, through a course of Targeted Training, children with Cerebral Palsy can be 3-4 times more likely to gain gross motor function compared to conventional physiotherapy alone.”
Leo was 18 months old when referred to The Movement Centre. He had been delayed in his motor development and had not yet succeeded in pulling himself to standing (by this time a typically developing child is generally walking).
A thorough assessment of Leo’s abilities was undertaken at The Movement Centre. The assessment showed that he had difficulty with his trunk control and it was determined that he could benefit from a course of Targeted Training therapy. The course would be aimed at improving his strength and endurance to tolerate standing and progress his strength and control towards doing so independently.
At the appointment he was measured for his Targeted Training standing frame. Once it was ready, and funding was in place, his course started. Leo was given goals to work towards, and he and his family was sent home with a specific, individual physiotherapy programme. Initially he worked on his kneeling and sitting abilities. He was a determined little boy, so we were sure he could achieve these goals.
Leo and his family attended his first review around 8 weeks later, and we were all impressed with the progress he had already made. They had all worked really hard, engaging Leo in reaching activities, playing with his favourite toys. Having achieved all of his original goals, Leo’s Physiotherapist, Pauline, made the decision to lower the amount of support from the standing frame, and give him new goals to work towards.
Other goals such as crawling abilities were surpassed, and Leo continued to work on his standing abilities. Leo enjoyed being in his standing frame, and was really engaged. He also enjoying the feeling of standing, so we were sure it wouldn’t take to long for him to find his feet.
At his third review, about half way through his course of therapy, Leo had achieved his goal of standing while supporting himself on a bench. He could even take few steps sideways. He really relished this moment and smiled throughout. Leo was given updated goals, which presented him with an even bigger challenge. He was now asked to take some steps, while holding onto his mum’s hand. He surpassed expectations again! On his last appointment, smiling as ever, Leo showed us all his fantastic stepping, even showing off walking up our steps.
“As seen today, Leo has certainly found his feet. He is hugely motivated to be in standing and stepping when changing location. If someone is close by, he will grab an opportunity to have support with his stepping but he has clearly demonstrated that he can do this very successfully independently”. Physiotherapist, Pauline (at Leo’s final assessment).
Leo’s new abilities mean he can be far more independent, which is already having a huge impact on his life.
We are sure Leo will continue to progress, and have a very bright future!
Our impact in 2019
In 2019 more children started courses and more children reached new milestones. We had 67 active course of Targeted Training therapy at the Movement Centre last year, which lead to children reaching goals set for them.
Targeted Training can have a huge impact on not only the children’s lives but also the families. Having interviewed one of the parents last year, she stated “Before Freya started her course of target therapy training she had very limited head control and could not keep her head in a mid-line position. Her head was turned to the left side and she need assistance turning her head to mid-line position and to the right. She’s non verbal but very sociable and uses eye gauze to communicate. This was difficult as she could not turn her head to indicate what she wanted.
Her head control has improved and she can now keep it mid-line for long periods and turned her head from left to right. Because of this her communication has come along and she is more vocal. At nursery she can now follow what the other children are doing by turning her head and can also join in with their play more. With better head control, she is now using a communication board at nursery to choose the activities she wants to do.”
This is the impact we can have on all children who attend The Movement Centre, and 11 children even took their first steps while on a course of therapy. These families may have been told that their child may never walk, but we give them the chance!
“Excellent- Lacey is a different girl since attending The Movement centre. The support Lacey and all the family received is amazing, like the staff. We can’t thank them all enough!”
What did our survey tell us?
Of families attending The Movement Centre felt they had more than enough support from their therapy team
Of families attending The Movement Centre rated their experience as Excellent
- Of all sitting goals were achieved. 78% 78%
- Of all standing goals were achieved. 88% 88%
- Of our families would recommend The Movement Centre 100% 100%
Enhancing our services
Alongside our key activity of providing Targeted Training Therapy, we are aiming to further develop our services. In 2019 we made massive steps in pushing The Movement centre forward.
Annual Patient Survey
Once Again, we had fantastic feedback from our family survey in 2019, with 90% of families rating their experiences at The Movement Centre as Excellent. 100% of families who answered our survey also said they would recommend us to other families, with some stating they had already. In 2018 we asked whether families would like more support between assessments, and some said yes. We are pleased to share with you that 100% of families who took the survey last year stated they felt enough support was given.
Our annual survey is a chance for us to improve year on year, and a chance to hear what our families have to say. Here are just a few of the lovely comments we had:
- “A dedicated team of people who have worked hard to help with Eadie’s progression. Thank you from the bottom of our hearts”
- “An excellent service which has helped our son tremendously”
- “We have learned so much from The Movement Centre and are very grateful for everything”
- “Hayley has moved forward more with Targeted Training than with any other form of physical therapy”
- Unlike any other physical appointment- welcomed with a hot drink, not rushed. Charlie doesn’t associate The Movement Centre with hospital, as there are lots of toys and play during the assessment.”
- “A very good experience for us all.”
New therapy folders
Our new therapy folders enable families to have one central resource to store all of the information throughout their child’s course of Targeted Training therapy, including the detailed reports that are produced after each assessment at The Movement Centre. It also allows for families to record progress and achievements from their daily Targeted Training sessions at home.
Activity Packs Making a difference
Last year, we had a grant to purchase sensory items and toys for the therapy packs to give to the children at the start of their course of therapy. Some of the items we purchased included light up balls, squeaky toys, feathers, balloons, sound books, puppets, bubbles and slinky’s. This has had a massive impact on the children’s’ course of therapy by enhancing their sessions through the use of engaging and exciting toys and encouraging them to take part in the therapy sessions.
Teaching and Raising Awareness
The Movement Centre engages with external audiences to raise awareness of our work. This year we have had a detailed programme of teaching and raising awareness. Some highlights from 2019 include:
- The Movement Centre provided clinical supervision for two physiotherapy students during the year from Keele University.
- Our team attended three Kidz to Adultz exhibitions in Coventry, Bristol and Manchester to raise awareness of Targeted Training therapy to families and clinicians
- We connected with new and built existing connections with various organisations such as- Therapy Stars, Boparan, Brainwave, Alex’s Place, Cauldwell Childrens, Hope House Hospice and LJMU.
- Our therapy team raised awareness when they attended- Keele Careers fair, and departments providing SDR surgery including Leeds and Alder Hey Hospitals. They also gave talks at Birmingham Children’s Hospital and Coventry and Warwickshire Partnership Trust.
- Our Specialist Physiotherapists guest lectured on Keele University Post Graduation module in Assistive Technology in Neurological Rehabilitation which was a great success.
Social Media Influence
- In 2019 we grew the number of followers on Facebook and Twitter
- We joined the growing trend that is Instagram
- We connected further with our families through our Family Networking group
Mural artwork at The Movement Centre
A couple of years ago we were very lucky to have Mural artist Rory McCann very kindly donate his time and services to The Movement Centre, creating some fabulous murals in our reception and treatment rooms. More recently we have teamed up with Moreton Hall School, who have designed and painted this incredible mural on the outside of our building. It is a fantastic piece of art, and it really brigthens up our building, making it an enjoyable visit for children and their families.
2019: The graduating class
Every year we celebrate the achievements of all of the children who come to The Movement Centre and those who have completed a course of therapy. Our 2019 Awards Party took place on 29th May. It was wonderful to be able to share the day with so many of the families and supporters.
The day was supported by a number of people and organisations including The Venue, who kindly hosted the event , Fun Science Shropshire put on a fabulous science show and Lanyon Bowdler supplied us with their Teddy Hoopla game. At the event we also presented the Lady Trevor Award to one of our fantastic volunteers Kelly Clarke for her contribution to the Movement Centre.
Freya was referred to The Movement Centre and attended for her initial in March 2018. Freya then went on to start at course of Targeted Training Therapy at the end of August 2018. Freya had a diagnosis of Crigler-Najjar syndrome Type 1, Kernicterus, Dystonia and Global Development Delay and this caused issues with head control.
Freya’s mum said “Before Freya started her course of Target Training Therapy she had very limited head control and could not keep her head in a midline position.
Freya’s head was turned to the left side and she need assistance turning her head to midline position and to the right. Freya is non verbal but very sociable and uses eye gaze to communicate. This was difficult to use as she could not turn her head to indicate what she wanted.
Just before her course of therapy commenced, Freya used an eye gaze computer and she couldn’t use it independently because of not being able to hold a midline position. We had to hold Freya’s head in a midline position and she only tolerated this for 5-10 minutes at a time.
Seven months in to her course of Targeted Training Therapy, Freya got to use an eye gaze computer again. This time Freya could hold her head in a midline position independently and was able to use the eye gaze technology for 30-40 minutes with no rest in between.
Freya’s head control has improved and she can now keep it midline for long periods and turn her head from left to right. Because of this her communication has come along and she is more vocal.
At nursery Freya can now follow what the other children are doing by turning her head and can also join in with their play more. With better head control, she is now using a communication board at nursery to choose the activities she wants to do”.
A course of Targeted Training Therapy has certainly had a big impact on Freya’s life. Freya’s quality of life has been improved as she is now able to communicate her needs and wishes and to interact with others by using eye gaze technology. Freya is now able to turn her head and keep a midline position for longer allowing her to watch and learn from the world around her as well as taking part in many activities that she enjoys.
Freya is a very happy little girl who loves interaction and we hope that she continues to make progress in the future.
A year full of fundraising
2019 was full of fundraising events for The Movement Centre. It is important for us to not only raise funds but raise awareness of the work we do. Holding such events give us an opportunity to reach out to community groups, individuals and corporate partners.
Annual Canal Walk
Our annual Canal walk takes in the most spectacular views. This year there were two walks to choose from with a 12-13 mile walk and a shorter Mini’s Canal Walk, aimed at families with young children, which was around 4-5 miles. Both walks took in the most beautiful views, walking over two aqueducts, walking through a 420 metre long tunnel and with fantastic views of the River Dee. Everyone had a great time, and were provided an afternoon tea once they had finished.
In the community
Last year we launched our #Cake100 challenge, with people urged to hold their own cake sale and help us reach 100 cake sales. We didn’t quite get that 100 so this is still ongoing. We raised an incredible amount, and would like to invite you all to hold your cake sale.
We can’t thank all of our volunteers enough for supporting us at our bag packs last year. We enjoyed meeting the community and raising awareness in Sainsbury’s and Morrisons.
We gave talks to local organisations including WI groups, Rotary groups and businesses. We were also very lucky to receive funds from some of these organisations.
Guinness World Record
Last year we teamed up with Oswestry Rugby club to attempt to break a Guinness World Record. We attempted the largest number of participants in a Rugby Union Lesson. We are still waiting for confirmation……Watch this space!
Individuals and corporate partners golf for charity
We held our third charity golf day at Oswestry Golf Club, on Friday 20th September 2019 and raised over £3000. There were some great scores. The charity golf day had teams of 4 battling it out to win a tailored golfing holiday to Ireland, kindly donated by Club Choice Ireland. We are so lucky that Club Choice support our charity golf day. It brings a bit of excitement to the day when there is a holiday up for grabs.
Companies such as Aico, Granite, FBC Manby Bowdler, Perspective and Lanyon Bowdler have been very supportive over the last year, and we can’t thank them enough.
Without the support of fundraisers, companies and individuals The Movement Centre wouldn’t be able to continue to support the children and families that attend The Movement Centre.
Percentage of donations that go directly to helping children gain life changing skills
Research & Development
In September 2017 The Movement Centre began working in partnership with Liverpool John Moores University. The aim of the collaboration is to design a piece of equipment to be used in Targeted Training therapy. We continue to work closely with a Postgraduate design team from the Department of Maritime and Mechanical Engineering. The development of a new piece of specialist equipment could have a huge impact on Targeted Training therapy and our future development. Advisor to The Movement Centre, Gabor Barton (MD PhD), who is a Professor of Clinical Biomechanics at Liverpool John Moores University, is working closely with the design team and supporting the partnership.
Gabor also continues to support The Movement Centre with the development and creation of virtual reality games, that will enhance our therapy, and make the assessment a fun environment for the children attending.
We were also delighted to be asked to participate in research into Video Retrieval Systems, which is currently in the editorial phase, prior to publication. Our therapy team are always looking for new ways to develop our therapy and our services.
Collaboration with LJMU
In September 2017, The Movement Centre opened a new chapter working in partnership with Liverpool John Moores University. The aim of the collaboration is to design a piece of equipment to be used in Targeted Training Therapy. We are working closely with a design team from the Department of Maritime and Mechanical Engineering led by Dr Ariyan Ashkanfar and advisor Dr Russell English who are supervising the engineering team and providing technical support for the partnership. Advisor to The Movement Centre, Gabor Barton (MD PhD), who is a Professor of Clinical Biomechanics at Liverpool John Moores University, is working closely with the design team and supporting the partnership.
- Coming Very soon to a screen near you!
Thank you to all of our families, supporters, donors, fundraisers and volunteers from everyone at The Movement Centre for helping us to make a difference!
‘The Movement Centre’ and ‘Targeted Training’ are trademarks of The Movement Centre for Targeted Training. Company Registration Number 3713213, A Company Registered in England and Wales and Limited by Guarantee. Registered Charity Number 1075549.